I am writing to you today as a constituent and as a person living with Duchenne Muscular Dystrophy (DMD). I understand firsthand the challenges and difficulties faced by individuals and families affected by this devastating genetic disorder. That is why I am reaching out to you to request your support for legislation that would implement newborn screening for Duchenne Muscular Dystrophy in our state.
Duchenne Muscular Dystrophy is a progressive and debilitating condition that primarily affects boys. It causes muscle weakness and degeneration, leading to mobility issues, respiratory complications, and ultimately, shortened lifespans. Early diagnosis is critical for accessing appropriate medical interventions, therapies, and clinical trials that can significantly improve outcomes and quality of life for individuals living with DMD.
Unfortunately, many children with Duchenne Muscular Dystrophy are not diagnosed until they begin to show symptoms, often missing out on the opportunity for early intervention and treatment. By implementing newborn screening for DMD, we can identify affected infants shortly after birth, allowing for timely medical care and support services to be initiated.
As someone living with Duchenne Muscular Dystrophy, I know the importance of early intervention firsthand. I have experienced the challenges associated with delayed diagnosis and the impact it can have on individuals and their families. By supporting legislation for Duchenne Muscular Dystrophy newborn screening, you have the opportunity to make a significant difference in the lives of countless individuals and families in our state.
I urge you to consider the importance of newborn screening for Duchenne Muscular Dystrophy and to support efforts to implement such screening programs. Your advocacy on this issue could help ensure that all newborns have the opportunity for early detection and intervention, ultimately improving outcomes and providing hope for a brighter future for those living with DMD.
Thank you for your attention to this critical matter. I hope that you will join me in supporting legislation for Duchenne Muscular Dystrophy newborn screening and help make a positive impact on the lives of individuals and families affected by this condition.
I am writing to you today as a constituent and as a person living with Duchenne Muscular Dystrophy (DMD). I understand firsthand the challenges and difficulties faced by individuals and families affected by this devastating genetic disorder. That is why I am reaching out to you to request your support for legislation that would implement newborn screening for Duchenne Muscular Dystrophy in our state. Duchenne Muscular Dystrophy is a progressive and debilitating condition that primarily affects boys. It causes muscle weakness and degeneration, leading to mobility issues, respiratory complications, and ultimately, shortened lifespans. Early diagnosis is critical for accessing appropriate medical interventions, therapies, and clinical trials that can significantly improve outcomes and quality of life for individuals living with DMD. Unfortunately, many children with Duchenne Muscular Dystrophy are not diagnosed until they begin to show symptoms, often missing out on the opportunity for early intervention and treatment. By implementing newborn screening for DMD, we can identify affected infants shortly after birth, allowing for timely medical care and support services to be initiated. As someone living with Duchenne Muscular Dystrophy, I know the importance of early intervention firsthand. I have experienced the challenges associated with delayed diagnosis and the impact it can have on individuals and their families. By supporting legislation for Duchenne Muscular Dystrophy newborn screening, you have the opportunity to make a significant difference in the lives of countless individuals and families in our state. I urge you to consider the importance of newborn screening for Duchenne Muscular Dystrophy and to support efforts to implement such screening programs. Your advocacy on this issue could help ensure that all newborns have the opportunity for early detection and intervention, ultimately improving outcomes and providing hope for a brighter future for those living with DMD. Thank you for your attention to this critical matter. I hope that you will join me in supporting legislation for Duchenne Muscular Dystrophy newborn screening and help make a positive impact on the lives of individuals and families affected by this condition.