Public Comments for: HB570 - Prescription Drug Affordability Board; established, drug cost affordability review, report.
Last Name: Cordeaux Locality: Newark

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Last Name: Spiro Locality: Hamburg Finkenwerder

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Last Name: Westrich Robertson Organization: AiArthritis (International Foundation for Autoimmune & Autoinflammatory Arthritis) Locality: Saint Louis

The International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis), a patient organization led by people affected by AiArthritis diseases, shares the committee’s goal of lowering patient out-of-pocket costs so that they can more easily maintain their health. However, we urge the committee to reject empowering a prescription drug affordability board (PDAB) to lead these efforts, which could ultimately cause more harm by creating more barriers between patients and their needed medications. AiArthritis has been actively involved in other states that have recently implemented local PDABs, including Colorado and Oregon, and have seen firsthand the limitations of the PDAB model in those states. Based on what we have seen, we believe that PDABs are ineffective in identifying and solving the actual problems patients with chronic conditions are facing when attempting to access their medications. Focusing solely on the price of drugs ignores the many complicated factors that ultimately drive costs up for patients and oversimplifies a very complex process. To employ a healthcare analogy, with PDABs policymakers are seeking to address a symptom rather than the underlying condition. We encourage policymakers to focus on these existing and pressing affordability and access issues, which originate from payers (insurance companies and pharmacy benefit managers (PBMs)). Additionally, reviewing only a handful of medications positions PDABs to create further inequities, picking winners and losers among patients and patient populations. We urge your committee to focus instead on the broader healthcare industry when considering reforms and identify long-term solutions rather than short-term relief for a limited few. Some PDABs have been given the authority to review prescription drug costs and set upper payment limits for them. Setting upper payment limits (UPLs) for drugs might endanger their accessibility in the state or limit appropriate reimbursement for the physicians that administer them. Patients with complex and chronic conditions often spend years identifying treatments that work for them. UPLs will not lower prescription drug costs for patients because they do not lower out of pocket costs. Additionally, treatments can also work for years but then become less effective, forcing patients to change therapies. There is no “one size fits all” health solution; therefore, it is critical that health policies do not impede access to treatments or lead to fewer options for patients. Proposals such as these target the most innovative medicines, disproportionately impacting patients with diseases where there is high unmet need and where low-cost treatment options are not available (e.g. rare diseases), running counter to the aims of personalized medicine and availability of new treatments.

Last Name: Bowman Locality: Alexandria

Alexandria is a vibrant city based on history, culture, a waterfront and lots of tourism. If Virginia has money and space to build an arena then you have money and space to build new schools. Our school system is deplorable. It’s overcrowded. Think of your citizens before thinking about your quick money grab that eventually leads to an inevitable loss. We don’t want or need an arena. This is pure greed.

Last Name: Sizemore Organization: SAARA of Virginia Locality: Richmond, Virginia

I am here to speak and endorse Del. Delaney's Prescription Drug Affordability Board bill.

Last Name: Gardner Organization: Freedom Virginia Locality: Southampton

My dad is battling stage 4 prostate cancer. He was diagnosed on 4/27/2023 and on 6/15/2023 we learned it was all over. Things looked scary yet we learned about a drug called Xtandi that could keep him with us longer. It is $8800 a month and we started going through the process of getting insurance to approve it. If they did approve it the cost would be $1905 a month. My parents are retired teachers and my dad gave 36 years to the students in Welding and Ag classes. My brother and I vowed they would get whatever they needed to fight this monster. I learned $8800 is pretty cheap for a life sustaining drug. $25,000 up to $90,000 is what some are charged. 1 in 4 Virginians don't take the right amount of prescriptions because of cost. My dad is lucky that we've made it work yet he taught me to look out for others. When you're fighting for your life you don't have the time to fight for drugs that will save you. Please support this bill and make it easier for others to get their prescription drugs. I'm currently on leave from my job to care for my dad and help my parents. If you need to ask any questions please feel free to email at robing98@gmail.com. Please vote the right way!

Last Name: Moran Locality: Manassas

I'm not sure which bill I'm commenting on entirely. All I know for sure is I'm a type 1 diabetic of 30 years. And our government seems to care very little about my health or the insane costs of the medication that I absolutely have to have to live. Or getting the care I need. Which has been expensive, and has kept me struggling to survive pay rent or see the many doctors I need to see. I am ready to share my story. About my lows where I wake up in the hospital then wind up with an $8000 hospital bill as well as a $4000 bill for a 10 minute ambulance ride. Or about my highs, or just about the struggle of being a Diabetic who was uninsured who struggles to survive in a government that seems to care more about pharmaceutical companies profits than it's citizens health. I have quite a bit to say on the subject and my struggles as a diabetic.

Last Name: fishman Locality: falls church

discussing impact of changes to payment structure for independent infusion centers.

Last Name: Eging Organization: Rare Access Action Project Locality: Purcellville

I am the Executive Director of the Rare Access Action Project. My family has been affected by rare diseases. Because of that I have spent much of my career in the life sciences advocating for access to rare disease therapies and supporting rare families. Only 5% of rare diseases have an FDA approved treatment. For one-third of individuals with a rare disease, it can take between one and five years to receive a proper diagnosis. Half of all patients diagnosed with a rare disease are children, and as many as 3 in 10 children with a rare disease will not live to see their 5th birthday. For the few fortunate to have a treatment, patients face barriers to these therapies across our health care system in addition to facing a patient journey filled with misdiagnosis and lack of treatment options. Having seen PDABs in other states, we are very concerned. Since the first PDAB was created in 2019 by the Maryland legislature, PDAB legislation has been passed in 8 states (Colorado, Maine, Michigan, Minnesota, New Hampshire, Ohio, Oregon, and Washington). Since 2019, the experiment in government drug price controls has amassed a dubious record of success. Maryland, the oldest of the PDABs, has yet to become operational, and others have struggled to fulfill their mission. The pharmaceutical ecosystem is more complex than proponents portray it, and PDAB legislation patches on a state bureaucracy with little understanding of pharmaceutical pricing policies and the implications of their decisions. Pharmaceutical products are purchased across the United States with Virginia involved in an interstate marketplace that includes a network of federal and state discount and rebate programs (Medicaid best price, 340b pricing, VA, FFS as well as the calculations and penalties that are attached to them). Further, many commercial plans and PBMs negotiate substantial discounts, and some payers have already begun to implement value-based pricing. States such as Arizona are exploring risk pooling for therapies and the uninsured, as well as reinsurance. Price controls from PDABs could jeopardize efforts to innovate value and payment in the pharmaceutical ecosystem. Also consider, rare disease patients increasingly participate in Center of Excellence care. Universities and larger hospital systems have become hubs for both care and treatment. Drugs are purchased and administered for some rare patients outside of Virginia. Challenges will face Virginian rare patients who are on a therapy purchased outside the state beyond the purview of the Virginia PDAB. And payment for those medicines will create risk for those providers, potentially choking off access to that necessary treatment. We urge you to ensure that no patient is left fearful of losing access to treatments that offer them a chance at a better tomorrow. We believe there are solutions that can enhance affordability across healthcare. But proponents of PDAB are focused on an experimental program that has generated zero savings for patients since the first PDAB was created in 2019. We urge you to vote no on HB570. We look forward to working with you on meaningful solutions to healthcare affordability.

Last Name: Srebnik Organization: Biotechnology Innovation Organization (BIO) Locality: Arlington

Comments Document

The Biotechnology Innovation Organization (BIO) respectfully opposes HB 570, which would create a Prescription Drug Affordability Board tasked with reviewing prescription drug costs and setting upper payment limits for specified prescription drugs. Government price controls like those proposed by this bill are an especially drastic action with unpredictable consequences. While the intent of this bill is to lower drug prices, we fear HB 570 will fail to bring down costs for consumers or institutions and instead disincentivize development of new therapeutic breakthroughs. This bill will not lower prescription drug costs for patients because it does not address out-of-pocket costs. Patients pay a given price when they visit a pharmacy based on what their health insurer determines—it is for this reason why two patients will pay a different price for the same drug. Out-of-pocket costs have been rising for patients as a result of decisions made by health insurers. HB 570 does not address the price patients pay out-of-pocket and will therefore not directly impact patient affordability for prescription medications.

Last Name: Srebnik Organization: Biotechnology Innovation Organization (BIO) Locality: Arlington

Comments Document

Please see the attached letter from The Biotechnology Innovation Organization (BIO) in opposition to HB 570.

Last Name: Modlin Locality: Powhatan

Comments Document

Small business support for PDAB and why it's critical to my workforce.

Last Name: Memphis Organization: Healthcare Distribution Alliance Locality: Washington, DC

Comments Document

HDA respectfully opposes HB 570, Establishing a PDAB. HDA is the national trade association representing healthcare wholesale distributors — the vital link between the nation’s pharmaceutical and healthcare manufacturers and more than 330,000 pharmacies, hospitals, and other healthcare settings nationwide. Wholesale distributors are unlike any other supply chain participants. Distributors are primarily responsible for the physical handling and logistics of medicines and healthcare products, and have no role in determining the list prices for drugs or the amount patients pay at the counter. Rather, HDA members ensure that over 95% of all pharmaceutical products arrive to over 5,800 sites of care in Virginia. While HDA supports the state’s efforts in seeking a better understanding of the prices that consumers see at the pharmacy counter, based on our members' supply chain expertise, we have strong concerns regarding the upper payment limit (UPL) established in the legislation, the use of maximum fair price (MFP), and the impact of these policies on the physical supply chain. State-level UPLs do not adequately reflect how prescription drugs are bought and paid for in the U.S. A state-level UPL, especially a UPL following federal MFP limits, would place caps on in-state purchases but not out-of-state purchases, ultimately limiting the ability of pharmacies, clinics or other points of care to recoup costs for administering or dispensing these products, which could result in sites of care being unable to stock these medications. In short, a UPL puts patient access to timely medications at risk. While HDA is concerned over the impact of this type of proposal, we would like to express our appreciation for the inclusion of “a representative with knowledge in…supply chain business models” on the Stakeholder Council. As noted, wholesale distributors do not set list prices or play any role in determining the amount patients pay for medicines at the counter, our members are the logistical experts of the supply chain, and HDA believes it is important that the stakeholder council is representative of the full supply chain. We invite the Committee to review our full letter, and to contact HDA at any time to discuss why we oppose HB 570. Thank you for your consideration of our concern.

Last Name: Karmo Organization: Tigerlily Foundation Locality: Loudoun County

Comments Document

Tigerlily Foundation is a national women's oncology organization providing education, advocacy, & hands-on support for young women before, during, & after cancer. I write to you today to express our organization’s concerns over HB 570, legislation that would establish a prescription drug affordability board (PDAB) in Virginia. Establishing a PDAB in Virginia will block access to essential medicines that Virginians rely on to manage symptoms & lead healthier lives, particularly for patients living with cancer & other chronic conditions & could further exasperate already existing health inequities. Prescription drug price setting policies that often accompany PDABs, such as upper payment limits (UPLs), fail to protect access to timely & effective care & can actually increase risks for patients who need consistent access to medications to manage their health. UPLs limit reimbursement for hospitals, doctors, & pharmacists who dispense effective treatments that help patients manage disease. As a result of the proposed PDAB, Virginia patients could be forced to search elsewhere to access medications they need & could end up forgoing critical treatments altogether, which can lead to adverse health consequences including death & higher medical costs in the future. In addition, establishing a PDAB in Virginia could divert critical research resources elsewhere & have a chilling effect on the development of new medicines for patients who have limited or no treatment options today for their condition. Furthermore, any proposed PDAB should be designed to include patients & be representative of those populations. This would also include patient advocacy organizations as community advisory representatives of the Virginia House to ensure that these & future recommendations include all stakeholders. For patients who are diagnosed with complex cancers like triple negative breast cancer (TNBC), a hard-to-treat type of breast cancer that has limited treatment options & is diagnosed in Black & Hispanic women at younger ages & later stages, timely & equitable access to medical treatments prescribed by one’s physician is critical. However, drug price controls can unintentionally threaten vital pathways for patients to access cutting-edge medicines that can help them survive disease. While we commend the Virgina General Assembly & other elected leaders in Virginia for exploring solutions that alleviate health care access & affordability challenges & reduce health disparities, any policy solution must not come at the expense of vulnerable communities in Virginia, particularly Black & brown communities who already face disproportionate barriers. TNBC, among other cancers and diseases, disproportionately affects Black women, & establishing a PDAB in Virginia would have disastrous consequences on access to care, future innovative treatments, & efforts to achieve health equity. On behalf of the communities Tigerlily Foundation serves, we thank you for your leadership in seeking policy solutions to address barriers to care that Virginia patients face. However, HB 570 falls short of that goal. On behalf of our community & as an 18 year survivor of TNBC myself & a Virginia resident, I thank you for your consideration of our concerns. Please do not hesitate to contact me directly at maimah@tigerlilyfoundation.org if Tigerlily Foundation can be a resource to you and your staff. Sincerely, Maimah Karmo Founder & CEO , Tigerlily Foundation

Last Name: Lanford Organization: Virginia Association of Hematologists and Oncologists (VAHO) and Association for Clinical Oncology (ASCO) Locality: Alexandria

Comments Document

Thank you for the opportunity to submit comments. Please see the attached letter.

Last Name: Boyer Organization: National Infusion Center Association (NICA) Locality: Austin

Comments Document

The National Infusion Center Association (NICA) is a nonprofit organization formed to support non-hospital, community-based infusion centers caring for patients in need of infused and injectable medications. Our organization writes to express concerns with the Board’s ability to establish an upper payment limit for prescription drugs. We applaud Virginia lawmakers for attempting to address drug costs for patients, and we appreciate that the bill notes this will be done with consideration for administration costs. However, we are still concerned that an upper payment limit will not only fail to achieve the intended goal, but it will also harm vulnerable patients in the process. Establishing a ceiling for how much an infusion provider can be reimbursed for a drug will disrupt the delicate economics of medical benefit drug delivery and put smaller, community providers—that represent the lowest-cost care setting for these expensive medications—at risk. Infusion providers typically acquire, administer, and bill for drugs through a buy-and-bill model. Under this model, providers are reimbursed for drugs they previously purchased and stored along with a small payment for professional services that does not begin to cover the overhead of their business, known as the admin fee. To remain in business, infusion centers rely on their drug payments to offset the incredible cost-reimbursement disparity on the professional services side. Drug payments are the economic lynchpin to offset practice expenses, including inventory management, staff salaries, and office space. Lower drug payments to infusion providers will force most of the state’s community-based infusion centers to shutter their doors or discontinue administering certain drugs, forcing patients into more expensive hospital care settings or potentially ending their treatments. Upper pricing limits put a ceiling on the reimbursement for certain drugs, but they do not guarantee that the drug will actually be cheaper for patients. An upper payment limit will only establish how much insurers in the state pay for a drug. It will not change the actual cost of drug acquisition and administration for providers, and it will not change what insurers require from patients through copays and coinsurance (most infusion patients use copay assistance to cover the cost of their medications, which insurers are trying to prevent through copay accumulator programs). Though well-intended, we fear that upper payment limits will harm infusion providers and their patients, leading to access issues across the state. Taking time to better understand the buy-and-bill model that most, if not all, infusion providers rely on, will only benefit the welfare of providers and patients in the state. We hope that the Committee will be open to exploring other options, such as an amendment that would exempt infusion providers from the impact of this bill - a provider carve-out. This would avoid disruptions to community-based care delivery and keep Virginia infusion centers and patients safe.

Last Name: Wartman Organization: National Minority Quality Forum (NMQF) Locality: Washington DC

Comments Document

January 31, 2024 RE: Written Testimony for House Committee on Health and Human Services February 1, 2024 hearing for HB 570 by Delegate Delaney. The National Minority Quality Forum (NMQF) is a 501(c)(3) not-for-profit research and advocacy organization based in Washington, DC. The mission of NMQF is to reduce patient risk by assuring optimal care for all. Our vision is an American health services research, delivery and financing system whose operating principle is to reduce patient risk for amenable morbidity and mortality while improving quality of life. NMQF is committed to reducing patient risk and ensuring equitable access to beneficial treatment and care for Virginians and communities nationwide. The National Minority Quality Forum is writing to you to share our concerns that a Virginia Prescription Drug Affordability Board (PDAB) may only serve to impede the progress toward achieving health care equity for all Virginians. Price setting policies that accompany the PDAB such as an upper payment limit (UPL) increase risks for amenable morbidity and mortality for patients who depend on Medicaid to assure effective and consistent access to prescription medications to manage their health. UPLs limit reimbursement to hospitals, doctors, and pharmacists who dispense drugs deemed the most effective to help patients manage a chronic condition. While healthcare systems that serve a patient mix with higher-income levels may be able to withstand the losses from the lack of reimbursements, hospitals that are responsible for disenfranchised communities may not. Ensuring the affordability of high quality, efficacious medications is essential to the elimination of inequities in health care and outcomes. This affordability must not be effectuated by promulgating public policy that increases the health and financial costs vulnerable populations and communities in Virginia, particularly rural, Black and brown communities who are reliant upon and equity-centric public policy construct. Price setting policies that confound access to care are a barrier to inclusion in data collection and investment in research efforts that improve the quality of care for historically excluded populations. In closing, the National Minority Quality Forum shares your concerns regarding the need to assure that Virginia’s health care safety net is financially viable; however, that financial viability must not service to compromise the health and financial security of Medicaid beneficiaries. We would welcome an opportunity to partner with the Commonwealth of Virginia to explore effective and sustainable policy avenues to improving the quality and outcomes of care for all Virginians. If you have any questions regarding this public comment, please direct them to Gretchen C. Wartman, NMQF Vice President for Policy and Program (gwartman@nmqf.org). Sincerely, Gary A. Puckrein, PhD President and Chief Executive Officer National Minority Quality Forum

Last Name: Varkonyi Organization: Freedom Virginia Locality: Fairfax County

Comments Document

I am submitting my statement in support of HB 570, PDAB, patroned by Del Delaney. I must take four injections per year of Skyrizi which has a co-pay of thousands of dollars per injection. Medicare pays the rest of the cost. For Virginians who are not on Medicare, they must pay as much if not more, subject to their private insurance. If on Medicaid., then the Commonwealth must pay the entire cost. HB 570 will limit Virginians copays by capping the upper limit that can be charged for these medications. Tens of thousands of Virginians, like me, must take expensive prescriptions or allow their health to suffer by not taking prescriptions. I will be protected by the Biden Adminisrtation's Inflation Reduction Act which this year and in 2025 will continue to limit my copays. But Virginians not on Medicare will not have this opportunity. This situation exists because Skyrizi remains on patent. I don't have a choice. As a taxpayer, I will also benefit because the Commonwealth will spend less on prescription drugs for those on Medicaid, those using state health plans and prison inmates. The savings of millions of dollars spent by the state will be greatly appreciated by the constituents of the General Assembly and the Governor when this bill is signed into law. Thank you.

Last Name: Bonnell Organization: The Bonnell Foundation: Living with cystic fibrosis Locality: Michigan

Comments Document

Thank you for accepting my letter in regard to HB 570. I represent cystic fibrosis patients in VA who are rightly concerned about the prospect of a Prescription Drug Affordability Board. On their behalf we ask you to read the attached letter and stop moving this bill forward. At the very least seek advice from as many advocates like me as possible. The patient voice needs to be heard, they should have a voice on the board, an appeals process and more. Thank you. Laura Bonnell

Last Name: Peters Organization: Global Coalition on Aging Alliance for Health Innovation Locality: New York City

Comments Document

Please allow us to share our written testimony for Thursday’s House Hearing on HB 570. We write to share our deep concerns of the potentially devastating impact of the newly proposed Prescription Drug Affordability Board (PDAB) on patients living in Virginia. The attached letter outlines these concerns in detail. We would be happy to discuss these concerns more or answer any questions you have. The Alliance for Health Innovation (Alliance) is a group of diverse cross-sector stakeholders that together represent patients, providers, caregivers, academia, biopharmaceutical innovators, and business communities. Led by the Global Coalition on Aging (GCOA), the Alliance is committed to establishing the importance of innovation in achieving healthy aging and advocates for state policy solutions that support a thriving innovation sector that enables Virginians and other communities to live longer – and healthier – lives.

Last Name: Laws Organization: Community Access National Network Locality: Slidell

Comments Document

Honorable Chairman Ward, Vice Chair Herring, Members of the House Labor and Commerce Committee, and respected staff, Community Access National Network is gravely concerned with the nature of HB 570 as a "quick fix" to complicated issues, posing serious threats to access of timely treatment for people living with HIV in the state of Virginia. Attached is a detailed letter of concern regarding the proposed prescription drug advisory board. As a patient group, our first and foremost concern is the bill's abject lack of focus on patient perspectives and failure to prioritize patient experience as an aimed outcome. In our experience in other states, namely Colorado, boards lacking specified patient voices are dismissive and otherwise unresponsive to patient concerns. This is especially troubling as PDABs are typically targeting medications used to treat rare diseases, cancer, and public health concerns, like HIV and Hepatitis C - threatening patient access to lifesaving care. Similarly, these boards tend to lack expertise across the drug channel and are exceptionally selective in pursuing information - often neglecting to consider conflicts of interest with contractors serving the board or failing to disclose these conflicts. Nothing in HB 570 requires assessment or monitoring of potential unintended consequences. Nothing HB 570 requires pass through of any "savings" to patients or plan sponsors. Rather HB 570 seeks to establish "winners" and "losers" among industry interests while leaving patients behind. Whether the "winners" are pharmacy benefit managers or particular manufacturers, patients are removed entirely from decision making of our own care but for the mere afterthought of public comments. CANN urges the committee to seek a different route, one focused on patients, evaluating barriers to care, like consolidation of the provider and pharmacy spaces, addressing payor originated administrative burdens, and tackling the self-dealing nature of "vertical integration" among these interests at the expense of patients, our employers, and the state. This is NOT that bill. We urge you to vote NO on HB 570. CANN is ever at your service and happy to discuss real solutions for patients, should the legislature find the pleasure to do so.

Last Name: Eging Organization: Rare Access Action Project Locality: Purcellville

Comments Document

I am the Executive Director of the Rare Access Action Project. My family has been affected by rare diseases. Because of that I have spent much of my career in the life sciences advocating for access to rare disease therapies and supporting rare families. Only 5% of rare diseases have an FDA approved treatment. For one-third of individuals with a rare disease, it can take between one and five years to receive a proper diagnosis. Half of all patients diagnosed with a rare disease are children, and as many as 3 in 10 children with a rare disease will not live to see their 5th birthday. For the few fortunate to have a treatment, patients face barriers to these therapies across our health care system in addition to facing a patient journey filled with misdiagnosis and lack of treatment options. Having seen PDABs in other states, we are very concerned. Since the first PDAB was created in 2019 by the Maryland legislature, PDAB legislation has been passed in 8 states (Colorado, Maine, Michigan, Minnesota, New Hampshire, Ohio, Oregon, and Washington). Since 2019, the experiment in government drug price controls has amassed a dubious record of success. Maryland, the oldest of the PDABs, has yet to become operational, and others have struggled to fulfill their mission. The pharmaceutical ecosystem is more complex than proponents portray it, and PDAB legislation patches on a state bureaucracy with little understanding of pharmaceutical pricing policies and the implications of their decisions. Pharmaceutical products are purchased across the United States with Virginia involved in an interstate marketplace that includes a network of federal and state discount and rebate programs (Medicaid best price, 340b pricing, VA, FFS as well as the calculations and penalties that are attached to them). Further, many commercial plans and PBMs negotiate substantial discounts, and some payers have already begun to implement value-based pricing. States such as Arizona are exploring risk pooling for therapies and the uninsured, as well as reinsurance. Price controls from PDABs could jeopardize efforts to innovate value and payment in the pharmaceutical ecosystem. Also consider, rare disease patients increasingly participate in Center of Excellence care. Universities and larger hospital systems have become hubs for both care and treatment. Drugs are purchased and administered for some rare patients outside of Virginia. Challenges will face Virginian rare patients who are on a therapy purchased outside the state beyond the purview of the Virginia PDAB. And payment for those medicines will create risk for those providers, potentially choking off access to that necessary treatment. We urge you to ensure that no patient is left fearful of losing access to treatments that offer them a chance at a better tomorrow. We believe there are solutions that can enhance affordability across healthcare. But proponents of PDAB are focused on an experimental program that has generated zero savings for patients since the first PDAB was created in 2019. We urge you to vote no on HB570. Our written testimony is included in an additional document.

Last Name: Boyer Organization: National Infusion Center Association (NICA) Locality: Austin

Comments Document

Letter attached

Last Name: Gelburd Locality: Charlottesville

Thank you to Chair Ward and Members of the House Labor and Commerce Committee for the opportunity to weigh on an issue that directly affects the health and wellbeing of the patients I serve. I write to you to ask for your support for HB570 in establishing a Prescription Drug Affordability Board in Virginia. As a physician who has practiced in our Commonwealth for years, I see every day how patients struggle to pay for expensive medications that I prescribe. Because every individual is unique, with unique health needs, doctors prescribe the best medications that are tailored to best meet the special needs of our patients. Unfortunately, prescription drugs are becoming more expensive every year. And when prescription drugs become more expensive, my patients feel the pinch. For those who have to pay out-of-pocket, prescription drugs can be downright unaffordable. In some cases, my patients have told me that they pay thousands of dollars for medications they need to be healthy. Many Virginians are in the same boat. Too many of them are skipping their medications or splitting pills. A majority of Virginians are concerned they won’t be able to pay for their prescription drugs. Prescription drugs don’t work if people can’t take them. Medications don’t work if people split pills and skip them every other day. And in the case of certain medical conditions, not taking medications as prescribed can have harmful, even potentially deadly, consequences. No patient should have to ration their care. No patient should be denied their medications because cost is a barrier. By creating an independent panel of health care experts who will weigh data and involve all stakeholders, we can begin the work of bringing down high drug costs and finally bring some balance and fairness to a health care system that has long squeezed hardworking Virginia families. For these reasons, I strongly encourage you to support HB570.

Last Name: Henderson Organization: Coalition of State Rheumatology Organizations Locality: Chicago

Comments Document

Details in attached memo.

Last Name: Arthur Locality: Roanoke

Thank you for the opportunity to submit testimony in support of House Bill 570 to create a Prescription Drug Affordability Board. As a physician, I know too well how critical access to prescription drugs is for my patients. Prescription drugs are a key tool in a doctor’s toolbox for helping patients manage health conditions, prevent complications from illness, and improve quality of life. But right now, too many of my patients simply cannot afford the drugs I prescribe them. They may be forced to take a less effective, more affordable alternative, split pills, or just forgo their medication altogether. These patients aren’t alone — 1 in 4 Virginians who depend on prescriptions chooses not to take those medications solely because of the cost. At the same time, large pharmaceutical companies are making record profits. The largest one nearly tripled its earnings over the past two years, making $100 billion in revenues. In 2023, pharmaceutical companies hiked the list prices for 112 drugs at a rate higher than the rate of inflation. No Virginian should be forced to split or skip pills while pharmaceutical corporations are making money hand over fist. It’s time for lawmakers to take action. Doctors like me support the creation of a Prescription Drug Affordability Board to lower the cost of medicine by setting cost limits on how much patients will pay for certain medications. We trust that the health and medical experts who comprise the Board will use a data-based approach to set reasonable rates for patients to pay. By creating a Prescription Drug Affordability Board, Virginia lawmakers can help hold greedy pharmaceutical corporations accountable and make the market more fair. But more importantly, you can help my patients and all Virginians who rely on prescription drugs better afford the medications they need to live and thrive. I urge you to pass HB 570 without delay.

Last Name: Horn Organization: Arthritis Foundation Locality: Washington, DC

Comments Document

Chair Sickles and Members of the Committee, On behalf of the Arthritis Foundation, representing the nearly 60 million Americans and 26% of Virginia residents living with doctor-diagnosed arthritis, we would like to provide comments on HB 570, a bill to create a Prescription Drug Affordability Board (PDAB). People with autoimmune forms of arthritis often rely on biologic medications to maintain their health, and as these are expensive medications, issues of high drug costs and access are always a top priority. Please find the attached comments for information only on this legislation and considerations for those living with arthritis in Virginia. Thank you for your consideration. Melissa Horn Director of State Legislative Affairs, Arthritis Foundation

End of Comments