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I am a sickle cell caregiver to my son. I fully support all bills that brings awareness and support to this painful disease. I support HB252 where there needs to be a statewide registry. No sickle cell patient should feel judged or labeled as drug seeking which is the reason I support HB257. My son has been admitted two times in 6 months. Each time has been stressful but a plan was put in pace both times and the care was great for him. As an adult, I fear his care may not be a great due to the labels that come with disease by some medical professionals. I feel these bills are a great start leading us in the right direction. We need sickle cell patients to know that they matter and will get the care they deserve. I support HB820, as well as HB255.

To the honorable members of the Health and Human Services Committee I am Robin Whitley the co-Convener for Hampton Roads of the Black Women’s Roundtable VA. We support issues that surround Black Women and Black Girls. Sickle Cell Anemia is prevalent among members in my paternal familial lineage. I was raised to believe I carried a Sickle cell trait but fortunately I do not. So many babies are born to women with this debilitating disease , when in fact with education, tracking, resources and research we can significantly reduce the number. I support HB 252 to develop a statewide registry to help build a database of individuals with SCD and match them with resources, screenings, generate data for funding and implement useful tools and programs. I also support HB255 There has to be a way to screen people to determine if they carry a sickle cell trait and annual physical exams are a good way to start with consent and an option to opt out. Likewise, I strongly support HB 820 to keep up with medical advancements and cutting edge technology and treatments for Sickle Cell Anemia to give assurance to all those diagnosed who should be on a state registry. HB257 is needed for adults who are going through crisis and may not have medical insurance or come to an ER for treatment as are often labeled as drug seeking. Finally, Sickle Cell Anemia is a painful disease but we can work together to make a huge impact. Please support these bills and thank you for considering my written statement.