Public Comments for: HB1455 - Virginia Memory Project; established.
Last Name: Cordeaux Locality: Newark

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Last Name: Spiro Locality: Hamburg Finkenwerder

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Last Name: Bowman Locality: Alexandria

Alexandria is a vibrant city based on history, culture, a waterfront and lots of tourism. If Virginia has money and space to build an arena then you have money and space to build new schools. Our school system is deplorable. It’s overcrowded. Think of your citizens before thinking about your quick money grab that eventually leads to an inevitable loss. We don’t want or need an arena. This is pure greed.

Last Name: Bluestein Locality: Virginia Beach, VA

January 31, 2024 Respected House Health and Human Services - Behavioral Health Committee Members: I am writing to state my utmost support for passage of the 2024 Virginia House of Delegates Bill NO. 1455. I am most hopeful that passage of this bill will codify and underwrite the establishment of the Virginia Memory Project (VMP) as a population-based, statewide Alzheimer’s Disease and Related Disorders (ADRD) registry. I am passionate about the VMP. To be sure, national and statewide data on ADRD incidence, prevalence, and cost is chilling. More personally, as a Geriatrician, I have cared for many Virginia patients and families with ADRD. I thus have seen over and over the suffering these devastating disorders inflict. I see the VMP as a leader and a cutting edge innovation in Virginia’s battle against ADRD. In establishing the VMP, Virginia becomes only the 4th state to boast a statewide ARDR registry. Benefits are multiple, first as a means of examining ADRD distribution and determinants, and second by offering crucial insights on unmet needs for purposes of planning of medical and social services, examining ADRD-related socio-demographic disparities, and supporting ADRD research. Moreover, the VMP goes above and beyond registry” functioning as usual.” In its intentional design to allow self-reporting by ADRD caregivers and persons with undiagnosed cognition issues, it gives voice to constituencies that would otherwise be overlooked. With its linkages to education, support, and access to care, the VMP is of immediate benefit and help to its enrollees, thereby becoming the first and only “ADRD registry with a heart”. Although there is excellent return on investment, the VMP needs monetary support-for staff, consultants, infrastructure for data entry and management, structures and processes to ensure accuracy and confidentiality, and the capacity to generate accurate and timely reports. That such support would be forthcoming for the VMP via House bill 1455 would indeed be a huge win for this Commonwealth. Sincerely, Daniel Bluestein MD, MS, CMD-R, AGSF-R, Certificate Added Qualifications-Geriatrics Adjunct Professor, Virginia Geriatric Education Center/Virginia Center on Aging Virginia Commonwealth University College of Health Professions Professor Emeritus Department of Family & Community Medicine Eastern Virginia Medical School

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